My name is Daniel Copeland from the UK and my group is TAR syndrome which is short for Thrombocytopenia with Absent radii. Thrombocytopenia is low platelet counts, so you bruise and bleed easily, bleed for longer, get ill easily, and things like that. So, with the absent radii. There are two bones in your arm, the radius and ulna and we don’t have a radius. Our wrists are turned in. So its a bit similar to a looking like Thalidomider But it’s a very rare syndrome It hasn’t been around for very long I was the 18th person born in Britain with it. It was good. I had a lot of supports. The school I went to was a mainstream school but had a high value for disabled children. And to integrate them into social streams. You know to encourage them not to be separate and to be included as much as possible. We run a family support group which is especially for new cases and when the children are small. To educate them, to help just make things easier growing up and to have as much information on everything really. Because we’re such a small group its hard for us to gain information on, I don’t know, just things on a bigger scale. about how to run things better and how to help as many people with it as possible. To reach out to people to who may have the syndrome but don’t really know that there is support there. Just to share information and things like that I think is important for us to join a bit more of a community. Not only so we can learn about ourselves but so we can learn about other forms of dysmelia as well.