Fight back against inherited hypertrophic cardiomyopathy
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Fight back against inherited hypertrophic cardiomyopathy


(gentle music) – [Narrator] Catherine Gray’s
heart problems may originate from her family tree. She has Hypertrophic Cardiomyopathy, an inherited or genetic condition that can ’cause shortness of breath and in many cases, sudden death. – It was about three years ago, I started noticing jumping all over. And I was a heavy coffee drinker, so I cut down on that and that
really just didn’t get it. So, I started seeing a heart doctor here and he did the echogram and he diagnosed the Hypertrophic Cardiomyopathy. – Hypertrophic
Cardiomyopathy is a genetic, inherited cardiac condition. It occurs in about one in 500 individuals across gender, across countries, really pretty much across all populations. It is characterized by
an abnormal thickening of the heart muscle walls. Other important features of
Hypertrophic Cardiomyopathy are that there are areas
of scar tissue formation within the heart muscle
that are not normally there. All of these things
contribute to the underlying electrical instability of the heart muscle which can make individuals prone to having arrhythmias that can
result in sudden death. As patients are
experiencing breathlessness or chest pain with physical activity, it may be that their heart muscle’s become so thickened that it’s actually partially impeding blood
flow out of the heart. And in that circumstance,
there are a number of different treatment
options which include medications, usually to start with. If medications are not effective, then we may recommend other treatments, such as surgery to
remove the excess tissue or a special catheter based procedure that we’re doing here at
the University of Michigan, that’s called alcohol septal ablation where ethanol or alcohol
is injected down a branch of a coronary artery to
actually reduce the amount of excess tissue so that blood flow through the heart can be restored. – I had an alcohol ablation
and the results were wonderful. I was up after eight
hours, walking the halls of the University of Michigan hospital. After the procedure, it was
like someone released me. The pressure was gone, (laughing) whatever had me
around the throat was gone. (gentle music) – [Narrator] Both adults and
children with the condition can seek treatment at U of M’s Hypertrophic Cardiomyopathy clinic. – Here at the University of Michigan, we have started a Hypertrophic
Cardiomyopathy clinic. We’ve gathered specialists
from adult cardiology, from pediatric cardiology,
from cardiac surgery and from genetics so that
we can provide really a comprehensive and
multi-disciplinary approach to patients with
Hypertrophic Cardiomyopathy and to their families. I think the other thing
that’s really important as we learn more about the genetics and as we’re able to actually
perform genetic testing on patients, these centers
are going to be really key to moving forward with that
and to really being able to use genetic testing effectively so that we can improve the
management of patients. And hopefully in the
future be able to identify people that carry the genetic mutation, but find ways in which we can prevent them from developing the disease. (gentle music)

14 thoughts on “Fight back against inherited hypertrophic cardiomyopathy

  1. I am very sorry to hear about your condition.I am a student a a university in Texas; I'm doing a report and presentation on hypertrophic cardiomyopathy. Would you be open to answering any questions?

  2. I have HCM also. I had a icd installed 6 years ago. It has defibrillated 4 times, the last 2 being 2 months ago while on stage playing drums. It went off once but I didn't have enough sense to stop playing, I thought I could finish the song, but I was wrong, it hit again about 5 seconds later, twice as hard as the first time!! I decided it was time to quit then!!

  3. i have just lost my husband 2 weeks ago with this heart condition he was only 44 years old, they said he only had it mild but he deid while washing the car, i`m so said how i cope i don`t no, i am only 36 years old and i am left with 3 boys which i here could get it as well is this right

  4. I'm so sorry to hear of your loss. My father died aged 59, I was 18 when it happen. This condition can take loved ones away so suddenly and leave alot of questions. I was told that the condition starts to show when your aged in your early 20's and the person at risk should make an appointment with the doctors to go to the hospital for an Ecogram (Eco) of the heart to check the valves for any thickening. There is a 50% chance your sons could have it. I have to checked every year or two.

  5. There is alot of help nowadays and as long as regularly checked and caught early it should be ok. Sending Love and prayers to you at this difficult time. xxxx

  6. @traceyannsteele Tracey, I would have your sons checked out. I wouldnt worry; you should do this for safety precautions. My brother and I have cardiomyopathy, and my father had a heart transplant at age 39 because of cardiomyopathy. Our children will be checked for cardiomyopathy throughout most of their life. My son was first checked at age 5, his next will be checked at age 10.

  7. @IseultCharms I'm not a Doctor so I don't really know. My father was never treated for his HTCM. You'd have to ask a health care professional, sorry I couldn't be anymore helpful. Hope you find out. x

  8. I do not have the money to do my medical hypertrophy cardiomyopathy operation. Not only that, there is no money to go to the Americana that goes to the Emerica. Pour my forehead ([email protected])

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